EPIDERMOLYSIS BULLOSA
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Hope for rare skin disorder patients as AIIMS pushes for policy inclusion
According to the report, experts from AIIMS are currently assessing these conditions, and the Indian Council of Medical Research (ICMR) has shown renewed interest in collaborating on this initiative, signalling progress toward greater recognition and support for these patients.
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Rare diseases policy set for expansion to include rare dermatological conditions
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Iran demands US pay $6.8 bn for sanctions impact on patients
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Iranian court orders US to pay $6.7 billion after sanctions allegedly stopped special bandage supply
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US FDA approves Krystal Biotech's skin disorder gene therapy
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Six-year-old Chikhali boy with ‘butterfly skin’ stuns doctors
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